There are only two changes that would make it very easy for me to accept revealing my medical data, for science, research or just about anything else.
1. No insurance companies involved as health care gatekeepers. At the moment, they are very much an adversary to me.
2. Strong, enforced laws against employers discriminating for health. I'm sure the letter of the law currently sounds strong, but I'm assuming you have to sue to right any wrongs. Advantage employer.
Neither one of these will happen in my life time, because insurance companies make huge profits on throttling our healthcare, employers will always like flexibility to do what they want with the law, and both camps fund Congress.
1. No insurance companies involved as health care gatekeepers. At the moment, they are very much an adversary to me.
2. Strong, enforced laws against employers discriminating for health. I'm sure the letter of the law currently sounds strong, but I'm assuming you have to sue to right any wrongs. Advantage employer.
Neither one of these will happen in my life time, because insurance companies make huge profits on throttling our healthcare, employers will always like flexibility to do what they want with the law, and both camps fund Congress.